|Steve Shackel, diagnosed 1994|
I mentioned the ALS Ice Bucket Challenge in a recent article highlighting the social guiding that came with all the “disease awareness” we’ve been involuntarily immersed in via the media in the last few weeks. ALS meaning Amyotrophic Lateral Sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” meaning in short, a progressive neurodegenerative disease. Those challenged during the campaign were compelled to dump a bucket of ice water on their heads while video recording and challenging three more people to do the same, or else pay $100 to ALS research for the cure.
As Dr. Scott Graves points out in “Why I’m Not Participating in the ALS Ice Bucket Challenge,” it’s been 60 years of funneling money into cancer research – with what results? According this the ALS Association, it “has received $62.5 million in donations compared to $2.4 million during the same time period last year…” From the Ice Bucket Challenge alone…can you believe that?
For those doing ice bucket challenges for ALS, here is some relevant information you should know. The National Institute for Health allocated $40 million dollars for ALS research in 2014. It allocated $39 million in 2013. In 2012 it allocated $44 million. Over a 3 year period $123 million was allocated to ALS research by the NIH.
Is it reasonable to presume throwing more money at the problem is going to solve it?
Then Nick Brannigan, in his newest article, “Boycott the Ice Bucket Challenge and Truly Support Those with ALS,” reminds us of a few reasons not to simply “throw money.” Whereas I was rubbed the wrong way by the public shaming/humiliation aspect of the campaign, he demonstrates that the ALS Association supports research that is unusually cruel to animals – again with what results? It translates into drugs that are often not effective in humans, and the ones currently available might slow down the deterioration but not reverse the disease. Furthermore, I was disappointed, but not surprised, to see his information about dietary recommendations for ALS patients that are rife with processed junk and sugar. It reminded me of the time someone I know researched recipes through a large cancer society only to find a chocolate milkshake recipe with encouragement to indulge.
But the most encouraging reason to boycott such campaigns is the fact that people are reversing this and other neurodegenerative diseases naturally. Unfortunately, a campaign to get that important and potentially life-saving information out to the public at large has been shadowed by a giant ice bucket.
I stand in agreement with Nick, that if you are interested in truly helping those with ALS, please consider helping to sponsor the making of this new documentary about people who did not accept the death sentence prognosis, to show others real hope, and provide real-time tangible results for them.
As Coco Newton said in the preview:
How can anybody graduate from hospice and still be alive today if they haven’t done something really dramatic other than the conventional medical system?
See the campaign for “Healing ALS – MND – Lou Gehrig’s Disease” HERE
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